Re: Where is everyone?

On Apr 17, 3:05 pm, whozitsdad <whozits...@gmail.com> wrote:
> Good afternoon all.
>
> Well I don't know anyone on here as of yet and I'm guilty of spending
> too much time on other Lupus projects.
> Personal website, blog, fundraising, etc etc.
> I'd like to introduce myself and declare that I'm not Ironman :)
>
> My name is Terry;  married 10 wonderful years to the same lady (it
> helps).  I have a great six turning seven year old son.
> Toss in a couple of large dogs (Black Lab & Doberman) and you have a
> family!!!
>
> My wife was Dx 11 years ago with SLE.  If you're interested you can
> read her our story atwww.fightlupus.com It is too long to post here
> and I don't want to be accused being a spammer yet :)
>
> She just came home a few days ago from St. Lukes (Mayo hospital in
> Jacksonville Florida) after suffering a serious flare.  Good news:  no
> organ involvement.  Bad news: they're still working on determining
> whether she has cns involvement or not.  I say no, she says no, MRI
> says no...doctors still not convinced.
>
> Anyways, just wanted to say hello and let you know that I do troll
> this newsgroup.....just quiet most of the time.
>
> A bit about me you ask?  Full Time IT guy for a telecom/ISP;  advocate
> for Lupus/LFA and sit on this years awards & gala committee.
> I coach my son in ball and hockey and we live on a very beautiful
> island here in the Golden Isles.
>
> That's it for now.
> Terry

Thanks for the post.  I read your wife's story, and appreciated that
she shared it.  I keep thinking maybe there should be a website where
people can go and each person can write their "lupus story."  Mine
also began with medical mysteries that had everyone puzzled.  The
medical mysteries began at age 19, the Fatigue came at 23,  and here I
am at 30 just recently diagnosed and placed on treatment for 1
rheumatoid disease, though we do not know if I have others.  The
mystery continues.  A life of questions and uncertainty for me.  Thank
goodness my boyfriend wasn't scared off once I began a horrible flare
after we'd been dating a few months!  He's a sweetheart and joins me
for the 8+ hours of driving to and from each visit to my
Rheumatologist in Cleveland.

Thanks for being an advocate for research and a good support to your
wife!
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